January 19, 2009, Chicago, USA: Last year in 2008, Rich and Kim Rozek had decided there was a need for an outlet that would help to increase the awareness needed for Young-Onset Parkinson’s Disease (YOPD) and all the people living with this disease. The Rozek’s connection to the disease was close and personal. Rich, age 48, had been diagnosed with Parkinson’s almost nine-years ago. He also stopped working in 2006, which made life a bit of a struggle.
Through these past years, Rich and Kim have experienced first-hand the emotional and financial roller coaster ride that comes with the disease. They survived the past few years by having patience and becoming quick learners, regarding doctors, prescriptions, being cash-strapped, and the more than occasional wrench thrown into their future plans.
The couple initially thought about raising money for research and awareness, like the numerous other PD foundations out there, but decided in the end to do what they do best…TALK!
Soon after this epiphany, “Parkinson’s Disease Talk Live” was born! The concept was to do a one-hour, weekly online radio talk program that featured PD news, advice, and the occasional guest, plus callers with questions about living with the disease. What it turned into was a reality show, with the couple opening their life and experiences online for all to listen to, and learn from.
Over the initial first year, their listeners have increased, and the download’s have been in the thousands! The couple discovered their gut instinct was correct - there is a real need for a program that discusses the many facets of Young-Onset Parkinson’s Disease.
Now in the second year of “PD Talk Live,” they decided to start a second unique program online for those with YOPD – an online support group called, “The PD Cyber Support Group.” “We thought this was really needed. When you have YOPD, you’re typically between the ages of 30 to 55 years, and usually not prepared for PD in this stage of your life! You might have responsibilities like a spouse, children, a job, and financially not prepared! You might not have a local support group to attend, and if you do – you might not have the time or energy to attend! That’s where we come in. We share our experiences, and give them someone to talk to. Plus our support is convenient – it’s as close as your computer,” said Rich.
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